Holiday

Iv just managed to have a lovely weeks holiday away with my husband and son. We had to plan it around when my period would be so we could be back home for when the pain started.

It was so nice to be away, relatively pain free and have time to think.

I did get a call while away from my doctors secretary to explain that she had an update for me. The gastroenterology team that she referred me to has rejected my referral as my stool sampled showed no inflammation and so they just presume I have IBS.

The problem with this is that my last laparoscopy showed endometriosis and lesions on my bowel so surely that is what is causing my daily bowel pain, surely if removed my symptoms will be easier?!

The doctor has said because my surgeon has left the hospital I’m under it has caused some issues and she is referring my to another specialist clinic. It’s a great clinic with amazing feedback but I will be waiting at least six months for a standard appointment and I’ll have to start all over again from the beginning with investigations and surgeries before concluding that I need a hysterectomy which I am 100% certain of.

It seems that the only real option now is to either go private or continue to stay in agony for another few years. This is having such a detrimental effect on my mental health, relationships, work, my whole life. 😢